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The Gary Woodward Dyskeratosis Congenita Trust is a small charity which was registered in 2007.  Our mission is to bridge the gap and offer support, education and understanding for anyone who is affected or involved in this complex condition.

Our mission is to:

  • Provide support to anyone affected by Dyskeratosis Congentia.

  • Provide education to individuals, families, carers and health care professionals.

  • Produce leaflets and resources about the condition.

  • Provide updated information within our website.

Our Mission: Inner_about

AIMS OF 2024

  • Support research into Dyskeratosis Congenita.

  • Organise an online family support meeting.

  • Develop a leaflet and children's resources.

  • Fundraise!

Our Mission: Inner_about
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