The Gary Woodward Dyskeratosis Congenita Trust

The Gary Woodward Dyskeratosis Congenita Trust  PO Box 115, Sandy, Beds, SG19 1WZ

©2018 by The Gary Woodward Dyskeratosis Congenita Trust


We have held three successful family support days in London, this was a chance to hear guest speakers, meet other people affected by Dyskeratosis Congenita and learn new information about the condition.


Our most recent family support was Saturday 21st April 2018- we will shortly be announcing our next family support day!  We like to include any specific areas that are of interest for you, so please let us know if there are any topics you would like included in the family support day programme and we will try to arrange.  Similarly if there are any areas you would like to be added to the website, we will try to include these.


Family Support Day

Due to unforeseen circumstances the family support day in April 2019 is cancelled, a new date will be announced in the future.

Please register interest via email: